Category Archives: First Person

Working?

How is it possible to work right now, to think, to have the concentration to write things down, to do whatever it is we are expected to do in the course of these days and weeks, in the midst of climate collapse, war, genocide, and all the rest? The tough personal stuff, the tough world stuff. But it has always been like this. Always.

So get out there, find some joy to sustain you, take breaks when you need to, and continue your work, whatever it is. Know that I am trying too.

Also, dear subscribers, my subscription notices have not been working. Speaking of working. So look back, maybe read my memory of Stephen Lewis and catch up on whatever you like. I’m hoping this reaches you.

Stephen Lewis. A Great Canadian, a Moral Compass

On the passing of Stephen Lewis, I want to tell a Stephen Lewis story.

Stephen Lewis at Calgary Public Library event. I can’t remember the date

Stephen Lewis at Calgary Public Library event

On left, me. On right, Stephen Lewis. Middle, my friend Colleen.

Me, my friend Colleen, and Stephen Lewis.

I am fortunate to have met Stephen Lewis many times. One of these times was when I lived in Calgary and attended an event at which Stephen Lewis was speaking. I saw him speak whenever I could. I have always thought of him as Canada’s moral compass. There was a little meet-and-greet before one particular event, and there I was watching people meeting and greeting this wonderful man. I couldn’t help but notice people seemed to demand so much of his time and energy. He looked tired.

A day or two before, I had been interviewing Dr. Helen Caldicott, the Australian physician, author, and anti-nuclear crusader. She demanded to know if I had read Naomi Klein (Stephen Lewis’s daughter-in-law) and I assured her I had. Dr. Caldicott went on to sing Naomi Klein’s praises and explain to me why Naomi Klein was right about everything and a bright light for all of us to follow. We bonded over our mutual admiration.

When my opportunity to talk with Stephen Lewis came, I did not want to be a drain on his energy, so I told him about this conversation and he instantly lit up to echo the praise of his daughter-in-law. From there, he went on to tell me, in the most animated fashion and with the most incredible vocabulary, about the rest of the family. Whatever other wonderful things Stephen Lewis was, he was, first and foremost, a family man.

I was so glad to be able to give him something, this man who had given so much to so many. He went on stage looking sprightly.

Now, years later, I’m a member of one of the many grandmother groups that are part of the Stephen Lewis Foundation’s work. We raise money for our sisters in Africa who are trying to keep their families and communities together throughout the HIV/AIDS crisis and more. I only joined this group about three years ago, but I am so glad to be part of this important work and part of Stephen Lewis’s legacy.

If you would like to honour him, consider making a donation to the foundation. They do great work.

May Stephen Lewis rest in peace and power. May his memory be a blessing to his family and all of those who love him. May his deeds inspire all of us to be better.

(These photos are not from the same event I’m describing—they are from a Calgary Public Library event. But these are the only photos I could find of me meeting Stephen Lewis, so here they are!)

Six Years and Counting

March 13, 2020.

My husband and I decided to walk downtown to go see his parents. A long walk, but a nice one. We visited for a couple of hours. I can’t remember if we had tea or just did the usual technology problem-solving that had become a regular part of any visit. When we started the trek back home, it seemed pretty quiet for downtown Toronto. Hungry, we stopped in at Kinton Ramen on Bloor. When we got there, it was almost empty. Unheard of. There were the two of us sitting by the front window and another group of four in the back at a high top. The staff looked freaked out. We looked at each other and ate our ramen. I knew this would be the last time we were in a restaurant for a while. I’m sure the others in the restaurant knew too. By the next day (I think), they were shut down. We hopped on the subway after lunch, feeling the urge to get home quickly. There were about three other people on the same subway car. Ominous. On the short walk home from the station, we acknowledged that this was the last day we would have of going into restaurants and using the subway and… who knew what? Our lives changed just like that. Like Joan Didion says, “Life changes in the instant.” That was the instant.

I, unfortunately, already had lots of practice at isolation. Regular readers of this blog and anyone who follows my work knows I had a car accident in 2016 that left me badly concussed. I was unable to read, write, think too much, deal with light or loud noise or too much of anything. I had been working hard to heal and was making some limited progress. But I have to admit that at first, the slow pace of lockdown life was simply a relief to me. I didn’t have to say no to doing social things. I wasn’t missing anything. It was quiet. There was little traffic. For a long time, restaurants had been too loud and I would wear ear plugs if I went to one. Now I couldn’t go. The choice was taken away from me. Same for movies, concerts and everything else that was part of regular life. So, strangely, I was at an advantage at the start.

One person close to me called on March 15, panicked and crying. She said, “How are we supposed to do this? I can’t do this!” and I thought, “Welcome to the world I’ve been living in for four years.” I didn’t say that. Instead, I made a few suggestions on how to cope. However, panic was her preferred response, as it was for many people. I thought back to the start of my concussion and realized it had been for me too. But I had to panic very quietly. Everyone just needed some time. Occasionally, someone would ask me why I was so calm and I would remind them it was because I was already living a very contained life.

I remembered the first SARS. My friend’s father was dying and she was not allowed to go to the hospital to see him. It was serious. It was airborne. Toronto was in a panic. I knew this new SARS was airborne too (how could it not be?), but even I shied away from the implications at first. I still believed in public health. I followed their advice. I washed my hands and wiped down my groceries. That feels like eons ago. I remember an outcry from people who resented being told to wash their hands. I was absolutely astounded by this. Who doesn’t wash their hands, I wondered? I could not imagine what else people would be unwilling to do for themselves and for each other. Anyway, I assumed that there was a mask shortage and that was why the powers that be were not advising masking as a general practice for everyone. They made unintelligible distinctions between aerosols and other particles and whatever and it was all nonsense. I wished they would have just been honest about it, admit there was a shortage and ask people to leave supplies for health care workers first. But that was a dream world. Look at what had happened with toilet paper. Masks would have been hoarded the same way.

What I remember most about this time is how Public Health and other authorities muddied the message. The message never got clear again. How hard would it have been to explain harm reduction? The precautionary principle? The need to ramp up production of PPE?

I didn’t want to take medical supplies away from those who desperately needed them, health care workers or other workers who had no choice but to be in close proximity to others, so I started sewing. I gathered every scrap of fabric I could find, raided my craft supplies, found some elastic and got busy. First I made two layer cloth masks, then three, then four, at which point my sewing machine could barely get through the layers. I gave them to everyone I knew, to anyone who wanted them. It was something I could do to help, and I did it. I ran out of elastic. Eventually I found a small craft store that was packing orders for people and offering door stop pick up. With my elastic supply replete again, I kept sewing. Once masks were plentiful again, and no one on the “front lines” was going to run short, I started using N95s. Cloth masks are better than nothing, but not the best. I wore N95s all the time indoors in public. I’ve never stopped.

In the beginning, I wondered when I would see my daughter again. In a way, I was lucky. She was working “in the field” as an engineer and had to travel to Northern Ontario regularly. This travel and living in large work camps was incredibly stressful for her. The risks of getting covid were huge. On her way to and from home, she would stay in Toronto a few extra hours or an extra day. We would sit in the freezing cold together in the garage with the door open, masks on. That’s how we had Christmas in 2020. We called it, “The Saddest Christmas Ever.”

Toronto was different than other parts of Canada. Lockdown lasted a long time. Everything except truly essential services were closed. We couldn’t get a haircut. Such a minor inconvenience, but an example. Businesses were in crisis. For months. Rural people had the luxury of space. We did not. So much of what the rest of the country depended on came from big urban centres like Toronto. Those Amazon deliveries were starting from warehouses with masked workers in Toronto. Essential workers. Workers who kept us all going. Workers who had to get to and from home. Everyone breathing. There was a positive sense of everyone doing their part. We went outside and banged pots for health care workers. But people are impatient. It went on too long. The implications of what we were learning (that we actually COULD support each other, that temporary benefits actually COULD be extended into a UBI type program, that less traffic meant cleaner air and a healthier environment, that there were new, technology driven ways to increase inclusivity and so on) would impact everything about public policy. Some people didn’t want that. Most people I guess. It would be expensive, they said, not understanding what might be gained. Getting “back to normal” remained a goal, even though normal was so far back in the rearview mirror it was barely a speck. We were just beginning to understand the long term implications of Covid, of Long Covid, that Covid is a vascular disease that presents as a respiratory disease and continues to do damage long after the cold symptoms are gone. We knew almost right away it affected the heart and the brain. I had already done so much to heal my brain. I did not want to start over.

It wasn’t all bad. I remember on the second day meeting friends outside by Lake Ontario and all of us being completely amazed at the silence, at the clarity of the sky. No planes. No traffic. I had a 4km walk I did almost daily which took me through the Humber River Valley and to Lake Ontario. Animals were coming back. There were so many birds. One day, I encountered a ten point buck. A miracle.

We had such hope when vaccines came.

I don’t have the heart to continue. It is just too sad.

The pandemic changed our lives. My husband found the most enjoyable parts of his job were gone and retired. Early. We were lucky we could do that. People died. Public Health died. We got vaccinated. We left Toronto and came out west. More space. Fewer people. Easier. At least it was for a while. Until Omicron. The variant of variants. The variant that should have demonstrated once and for all why continuing to get and give Covid over and over was a terrible idea. But humans, man. We never learn.

There is chatter about the development of a sterilizing nasal vaccine. Maybe five years away. Imagine if the amount of money that just went into killing a bunch of folks in the Middle East had been dedicated to vaccines, or even to cleaning the air. Imagine.

Spring Cleaning In My Office

I’m feeling better and getting back to work!

For me, a new project starts with cleaning up. Out with the old! Make room for the new!

My office has been an utter disaster. Two years (plus) of illness has meant that not much work has been done. Goddess-knows-what has been piling up on my desk, and those piles have fallen over and merged into each other. At various times, my office has become my bedroom, the only place which could accommodate a hospital bed and all the other accoutrements of illness.

It has been chaotic in every way and no part of my home shows that chaos like my office.

Not anymore!

It’s finally happening. I’m feeling good. I’m cleaning up. I’m down to two medium piles of as-yet-to-be-excavated paper on my desk, and I believe neither of these include medical records. All of those are filed now. And all hints of my dark times are gone. (Well, there IS a requisition for a lab test on one corner of my desk, but there will always be something!) I believe I am about to find my novel in progress and notes towards a book of essays.

I have cleaned the closet that got stuffed with stuff when we moved in. It is organized. I know what’s in there now. With all the clean up, I even found a home for the Emergency Go Bags. They don’t have to live under my desk anymore! It all feels good.

Some bonus work: I also sorted out and found homes for all of my sewing, knitting, crochet, and other crafts. I even put all of my patterns into a binder. This is extreme organization for me!

Now I’m going through my book shelves. I’ve just given away 20 or so books about writing to a local writers group–not because I’m done with writing but because I’m done with those books! I regained a whole shelf and that has become a dedicated poetry shelf. And I’m reorganizing the rest of my books in a way that meet the needs of the coming writing projects better.

And as I do so I’m reading. READING! Reading deeply. I’m able to concentrate. I’ve found my old ongoing annotated bibliography and I’m using it again, not worrying about the break. I just started a 2026 section and am going for it.

It’s not too early for spring cleaning–the cherry blossoms are coming out here–and that is where I am. Springing back to my working life.

Yay!

Cherry Blossoms

The first cherry blossoms in the neighbourhood

Bachelor’s Degree in Applied Desperation

I’ve made a lot of jokes about the self-directed, involuntary and unwanted medical education I’ve undertaken these past few years. Generally, I am more on the “ick” side than the “interesting” side when we’re talking about biology or bodies. So. Much. Goo.

Anyway, my health has forced me into learning way more than I ever wanted to know.

I used to teach Women’s Health at Mount Royal College in Calgary (now Mount Royal University) and I’ve always been careful to stick to my area of expertise, which is sociology, not medicine. Women’s Health was about the social determinants of health, the impact of sexism, racism, poverty and so on. I have been the victim of gendered bias. More than once. For example, I was told for two years that a strange group of symptoms were about peri-menopause (I was 37) but I actually had cancer. Frustrating. And I’ve unfortunately had the experience of having iatrogenic disease, that is, disease caused by medical intervention.

Nevertheless, I’m not distrustful of the medical profession; I’m generally thankful and in awe. They know so much. But they do make mistakes. No one is perfect. I’ve learned to understand our doctor/patient relationship as a partnership. We’re a team. I have responsibilities in all of this. So I learn.

Oh, and I forgot to mention, I’ve also co-edited two quasi-medical anthologies with E.D. Morin, one about menopause and one about concussion and brain injury.

All this is to say, I’ve learned a shocking amount about various conditions, medicines, cancer, chemo, radiation, brain injury, neurology, hearts, lungs, blood, epidemiology, virology, and more. I read. I read huge medical studies. Generally, I understand them. I know the difference between a good and bad study. I look for what is peer reviewed.

I’ve learned all of this on an “as needed” basis. The order I’ve learned all this in is certainly not what any medical school would recommend, and I am no doubt missing some basics (like high school biology).

I got to thinking: what would I call this body of learning if I were empowered to give myself some kind of formal recognition of it? A Bachelor of Ad Hoc Diagnostics? I can’t help but notice the degree would be shortened to B.AD. That made me laugh. Then I got thinking about what else B.AD might stand for.

Bachelor of Applied Desperation comes to mind. Necessity is the mother of invention, but so is desperation.

I think I’m finally able to press pause on this ongoing degree. I’ve just been cut loose from two different doctors in the past two days. My life is getting simpler again. On to learning something else. Yay!

Recovery Queen

I call myself the Recovery Queen. Much and all as I don’t want to have to keep being the Recovery Queen, it’s better than not being the Recovery Queen, if you know what I mean.

What does recovery even mean? That’s up to you. Maybe the reason why I’m so good at it is that I keep changing the goal post to something I can achieve!

Anyway, today, two weeks to the day after my latest heart surgery, I got on my bike and rode 26 km with some of my riding friends from Victoria Grandmothers 4 Africa. We ride bikes and raise money for the Stephen Lewis Foundation. I’ve never met a more inspirational group of women. I went on the Tuesday easy ride, which a lot of us use as a recovery ride after our various “issues.” Hips and knees are always getting fixed. We are, after all, the age of grandmothers. And they are so enthusiastic! “Jane! You’re back!” It’s great to see them.

Then, about an hour ago, I talked to an old neighbour in another city. We usually check in around the New Year and I was glad to see her number pop up. She’s about to have a hip surgery and is anxious and scared (understandably). Her dad died a few years ago. I knew him. We always talk about him. She’s worried about the state of the world. Aren’t we all.

I offered a little unasked for advice. Oops. But once I was off the phone, I thought about what I do to help myself recover. How did I become the Recovery Queen?

Well, first of all there is luck, public health care, and a lot of help. Thanks everyone.

As for what I do myself, the most important thing I think is to help other people. When you are at your lowest, help other people. (Do it when you’re fine too.) There are a million ways to help and billions of people to help. Do something every day. Heck, pick up a piece of litter. Be a helper. It helps other people and it always helps you.

Surround yourself with believers, with positive people, with other helpers. My family is that for me. So are my close friends. So are the VG4A queens I ride with. Having said that, they are also realists. False positivity is often a form of gaslighting. You know where the line is and who your people are. Be with the people who are believers. Believers in what? In themselves, in you, in the GOOD, whatever that is for you.

Have something to look forward to. About six months ago, I decided 2026 would include a camping trip I’ve really wanted to take for a long time. Until this last surgery worked, it was more of a wish than a reality. It gave me something to plan for besides my funeral. It’s kind of a tough trip with lots of logistics. Perfect to keep my mind on something positive. And now it looks like I’m actually going.

Do something. Keep busy. If you can’t walk, do something sedentary. The crossword. Knit. Paint. Colour. Read. Listen to audio books. Join a book club. Start a book club. (Ok, enough about books.) But whatever it is you like to do, do it with intention. Do you love watching “Grey’s Anatomy?” Watch it with gusto. Start reading the Reddits. Check out the fanfic. Type the hashtags in to your favourite social media. Get really into whatever you’re into.

Grow something. A houseplant. Micro greens. A friendship.

Learn something. Whatever it is you want to learn, chances are you can make a start at it for free on YouTube or at the library. Track your progress, as in, write it down. (Oct 1, I could only tie one kind of knot. Nov 16, I’ve mastered four knots and am working on a clove hitch next.) Revel in your accomplishment. When people ask you what’s new, tell them what you are learning. “I’m learning to tie knots.” It may be the start of a great conversation.

Be nice to strangers.

When you wake up, think of something you are looking forward to that day. I look forward to seeing this man in a very fancy old-fashioned tweed suit ride his bike past where I live. There’s a dog named Pip who lives near me. I look forward to seeing him. When you go to bed, think about something good that happened during the day. Maybe the frost made a pretty pattern on the window.

I had a teacher once a few years ago, Patricia Lane, who told us all to find awe every day. It’s a good practice. I do it. I was already doing it, thinking of something good that happened in the day. Often it was something beautiful I saw. Maybe I heard a kid giggling. It’s an easy assignment for me because I’m amazed by things that are growing. Even in the sidewalk cracks. Today, I saw four seals. I saw two eagles. I saw Mount Baker snowy in the distance.

That’s enough for now. Please feel free to add a comment on things you do to help you through these tough times. We’re all recovering from something. You are not alone. And we can all be Recovery Queens.

Three grey haired women in bright cycling jackets.

Easy Riders